I've been thinking today about the sudden and tragic death of Jett Travolta. Rumor has it that the poor young man had autism, but his parents didn't seek any treatment (or any conventional treatment) because of their Scientology beliefs. Apparently, Scientology doesn't acknowledge the existence of autism or other psychological/behavioral disorders. Of course I'm the first person to champion a parent's right to do what they will medically and educationally with their children. I'm also the first person to support a family's privacy. So, all that being said this begs the following questions to me...
1. Do celebrities have some responsibility to bring awareness to issues like this at the sacrifice of their privacy in order to further the "cause"?
2. If Jett had a seizure disorder and wasn't properly medicated can I stand behind my "do what you want medically" stance?
3. If Jett had autism was the family within their rights to not provide educational opportunities by denying its existence?
I don't know the answer to any of these questions. In my first year teaching, I had a student die during a seizure. He was medicated. But, he was alone and unsupervised (most likely) in his bed in a residential facility. I often wonder if he could have been helped had a staff person seen the seizure begin. I can't believe this incident was 17 years ago.
Meanwhile, I imagine I've worked with 100 or so people with autism throughout the years. I can't fathom someone denying the existence of the condition. I can see people wanting to explore various treatments, even though my experience is that very few provide lasting change. But to just say "this doesn't exist". I don't get it.